Mantle Cell Lymphoma Insights

Specialty pharmacies: a guide for mantle cell lymphoma patients & carers

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Exclusive Report

Specialty pharmacies: a guide for mantle cell lymphoma patients & carers

Exciting breakthroughs in rare disease treatments mean more patients are gaining access to cutting-edge therapies - and specialty pharmacies are playing a crucial role in delivering these medications with expert support. But what exactly do they do, and when do they come into play?

AllMyHealth’s latest guide breaks it all down - exploring how specialty pharmacies work, their expanding role in patient care, and how individuals can engage with them. Plus, we spotlight specialty pharmacies such as Biologics by McKesson & CenterWell which support MCL treatment.

Available in both text and audio formats - dive in today and share with your community!

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The report is available for free online on the AllMyHealth website.

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Brexu-cel's role in high-risk MCL treatment

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Latest Research

In a study by Bruno et al. (2025), researchers analyzed real-world data to compare how patients with Mantle Cell Lymphoma (MCL) were treated in different healthcare settings. They looked at the types of treatments patients received, their participation in clinical trials, and their health outcomes. The study found that treatment approaches and patient participation in clinical trials varied depending on where patients received care. Additionally, these differences were associated with varying health outcomes for patients.

The study's findings highlight the importance of the healthcare setting in determining the course of treatment and the potential benefits of clinical trial participation for MCL patients. By understanding these patterns, healthcare providers can better tailor treatment plans and consider the role of clinical trials in improving patient outcomes. Bruno et al.'s research emphasizes the need for a more unified approach to treatment across different care settings to ensure all patients have access to the best possible care.

Community News

The Leukemia & Lymphoma SocietyThe Leukemia & Lymphoma SocietyFeb 11, 2025

The recent cuts to lifesaving health research are one of many threats that people with cancer face. We stand with blood cancer patients. ❤️ Read more 👉 https://bit.ly/40RxvZL

Lymphoma ActionLymphoma ActionFeb 05, 2025

“On the day before my wife’s 40th birthday, I got a call from the hospital telling me that I actually had lymphoma. I remember my first reaction was: ‘What is lymphoma?’ It was explained that it was a type of blood cancer.

Emotionally I am not the same person I was. It still hasn’t sunk in and I still can’t quite believe what I’ve been through. I am a worrier and am constantly thinking about what has happened to me and what might happen in the future.”

Nick talks about his diagnosis of diffuse large B-cell lymphoma, chemotherapy and his feelings after treatment: www.lymphoma-action.org.uk/Nick

#Lymphoma#BloodCancer#DLBCL

Lymphoma Action Post
MCL Our JourneyMCL Our JourneyFeb 05, 2025

I woke up choking, gasping for air. My heart racing, the dog freaked out… that was a couple hours ago, and I’ve been processing it.

I am an intuitive person, and my intuition has served me well. But lately, I’ve had a lot of anxiety, feeling a heaviness around my heart. I assumed that my anxious feeling was my intuition trying to tell me something. Now I have new knowledge that I want to share with you.

What is the difference between true intuition and the mind working overtime? Oftentimes, our minds take over, especially in situations where there are pieces of information, or past experiences connected, that may be negative or harmful. Hmmm… like cancer? The best thing to do is find calm. Meditation should work, but meditation just puts me to sleep. Finding a place or activity that breathes a sigh of relief is most helpful, and it will be different for each of us. Finding a quiet place or calming activity helps clear our overactive mind, but what I found in my research says it best. (I research things because facts calm me.)

Differentiating between true intuition and an overactive mind can be tricky. Here are a few points that might help:

1. Calm Presence: Intuition often feels calm and clear, like a quiet knowing. It's not frantic or anxious. On the other hand, an overactive mind tends to be noisy, filled with racing thoughts and what-ifs.

2. Consistency: Intuitive insights usually remain consistent over time, while overthinking can lead to different conclusions each time you think about the situation.

3. Physical Sensation: Sometimes intuition manifests physically, like a gut feeling or a sense of peace. An overactive mind might come with physical tension, like a racing heart or tight muscles.

4. Clarity vs. Confusion: Intuition brings clarity and a sense of direction, even if it's not what you want to hear. Overthinking can leave you feeling more confused and uncertain.

5. Emotion: Strong emotions like fear or anxiety are often a sign that your mind is working overtime. Intuition tends to feel more neutral, without a strong emotional charge.

We are exposed to a lot of information about MCL. Our doctors tell us stuff, we learn about others’ experiences in this group. We have our own experiences, good or bad. What’s important is that we can trust our intuition, and that we can differentiate between intuition and over-thinking. It’s that gut feeling that will help us make decisions about our own care.

Fortunately, it’s not MCL that’s challenging me right now. Oh, it’s a very long story that I will one day share. Matters of the heart. A stubborn woman stuck in her independence. A fear of change, failure, consequences. All hints for you of what will be a very good story… but not today. Today, I’m going to take a drive to someplace quiet, and try to clear my head… so I can again trust my heart.❤️